“As stakeholders we are here to start a dialogue – a direct and honest dialogue on issues related to the health and wellbeing of those with FASD and those who support them. And on these matters, it is imperative that you hear our voices.” FASD UK Alliance Statement, 22 October 2018
The FASD UK Alliance makes occasional statements and at times releases information collected in a cooperative way from across the groups.
Feedback from Stakeholders in England for NICE Quality Standard – “5 key areas for quality improvement
Responses from more than 320 stakeholders across England as gathered by the FASD UK Alliance to help inform the NICE Quality Standard on FASD consultation, October 2019.
Stakeholders “want the medical community and others interacting with their families to take FASD seriously. They want appropriate diagnosis, support and resources to help them stabilise and enrich their lives. They want to know that people with FASD will have security and support when they are adults.”
5 Key Areas for Quality Improvement (PDF)
Hear Our Voices: FASD Stakeholders Share Their Experiences With Policy Makers
This document includes input from more than 50 individuals and families affected by FASD. It is not scientific, it is anecdotal precisely because stakeholders are rarely brought into the discussions that impact their lives and futures.
Statement of the FASD UK Alliance
Meeting with Deputy Chief Medical Officer Prof. Gina Radford, 22 October 2018
“As a community too long left in the shadows, we bring goodwill, urgency and a determination to ensure that yet another generation of those whose lives have been affected by FASD does not fall through the cracks.”
FASD UK Alliance Statement 22 October 2018 (PDF)
Statement of the FASD UK Alliance
Meeting with Baroness Sheila Hollins
and Bill Esterson, MP, 23 May 2018
“As stakeholders we are here to start a dialogue – a direct and honest dialogue on issues related to the health and wellbeing of those with FASD and those who support them. And on these matters, it is imperative that you hear our voices.”
Statement of the FASD UK Alliance 23 May 2018 (PDF)
FASD UK Alliance 